Before your first appointment
Prepare for your first treatment planning appointment at the Westmead Breast Cancer Institute (BCI). The Welcome to Westmead Breast Cancer Institute page can help you to find information and tools to support your wellbeing, help you understand the health system, and prepare for treatment decisions.
A breast cancer diagnosis can feel overwhelming. Many people experience shock, worry or uncertainty. These reactions are common.
Working closely with your treatment team can help you feel more supported and confident during this time.
Research shows that people who actively participate in their care often:
- feel more in control of their treatment
- feel more confident making decisions
- feel more satisfied with their treatment plan
- experience fewer complications or side effects.
To learn more about working with your care team, listen to the podcast: Forged in Fire: relationships with your medical team and self-advocacy.
Emotional wellbeing
Many people experience strong emotional reactions after a cancer diagnosis. Learning about common responses and coping strategies can help you manage this period.
- Podcast: Diagnosis shock
In this episode, Dr Charlotte Tottman shares her personal experience of being diagnosed with cancer. She discusses common emotional and physical responses, including:- shock after diagnosis
- fight-or-flight reactions
- anxiety and information overload
- strategies that helped her process the news and talk with loved ones.
- Podcast: Setting healthy boundaries
After a cancer diagnosis, you may find that your energy and capacity change. In this episode, Charlotte explains:- why setting boundaries is important for self-care
- balancing your own needs with caring for others
- how feelings of guilt can affect recovery.
- Common reactions to a cancer diagnosis
Helpful information on coping with a diagnosis from the NSW Cancer Council.
Breast cancer information
Learning about breast cancer can help you feel more prepared for treatment decisions.
Helpful resources include:
- Myths about breast cancer
Factsheet from Breast Cancer Network Australia. - Optimal care pathway for breast cancer
Australian Government guidance on recommended care and treatment. - Optimal care pathway for Aboriginal and Torres Strait Islander peoples with cancer
Guidance that supports culturally safe care. - Just diagnosed – what next?
Educational webcast for people newly diagnosed with breast cancer.
When you are receiving treatment for breast cancer, active participation is important.
Active participation means you work with your healthcare team in partnership. You are an important member of your treatment team.
There are four ways you can prepare to be an active participant.
Step 1: Seek out trustworthy and reliable information
You may want information to understand more about your condition and treatment. It is important to use information you can trust, so what you read is accurate.
Step 2: Improve your health literacy
Health literacy relates to how people access, understand and use health information. People with low health literacy are at higher risk of treatment complications.
Resources to support your health literacy
- Podcast: Relationships with your medical team and self advocacy
Your medical team is often a group of professionals you do not know, who come into your life at short notice during a stressful and emotional time. Charlotte shares why it is important to advocate for yourself, what you can reasonably expect from different team members, and what is important to you. The podcast also covers cognitive and behavioural strategies to help you identify your individual needs, and tools that can assist. - Stage vs grade, there’s a difference
If you have read your pathology report, make sure you understand what the terminology means. - Understanding private vs public health
Factsheet, Breast Cancer Network Australia.
Step 3: Reflect on your lifestyle and other health issues
At your first appointment, your treating team will conduct a thorough examination. You can help keep yourself safe during treatment planning by making sure the information you provide is accurate.
Tools to help you prepare
- Printable medications list
PDF medication list that can be printed. - My Health Record
You can access your own health record. - Changes to discuss
Worksheet to write down how you have been feeling physically and mentally that may be relevant to your appointment. - Family health history log
Document any conditions that run in your family, as this may come up during your consultation.
Step 4: Make treatment decisions by identifying what is important to you
Identifying your personal goals helps your medical team plan your treatment. It is important you tell your team about your goals.
Examples of things to discuss with your team
- You are worried about how you would cope if you lost your breast.
- You would like to start a family or have more children.
- You have recently retired and have long-term travel planned.
- You are a full-time carer for a family member or loved one.
- You are worried about getting to and from appointments.
Decision aids
- Reconstruction: Breconda decision aid
If your breast needs to be removed, reconstruction may be offered at the time of the procedure to remove the cancer. This website helps you make decisions about the type of reconstruction that may work best for you. - Chemotherapy: before or after surgery?
Chemotherapy may be recommended before or after surgery. Therapy before surgery is known as neoadjuvant therapy. This decision aid can help you understand whether neoadjuvant therapy is appropriate for you.
Preparing for treatment
Now that you have your treatment plan, it is time to prepare your mind and body for treatment. This is known as prehabilitation.
The resources on this page can help you prepare for breast cancer treatment mentally and physically. They can be helpful for different types of breast cancer treatment, including surgery, chemotherapy, endocrine therapy, and radiation therapy.
Prehabilitation is any activity that aims to build your tolerance and resilience to breast cancer treatment.
Examples of prehabilitation activities
Prehabilitation activities can include:
- quitting smoking and vaping
- cutting back or stopping drinking alcohol
- eating less fast food or soft drink
- walking more
- starting shoulder range of motion exercises
- joining a support group
- continuing to work
- starting a good skincare routine.
Why prehabilitation matters
Research suggests prehabilitation can have benefits, including:
- increasing the effectiveness of treatment
- reducing complications, side effects, or both
- improving mental health and wellbeing
- helping prevent cancer returning (recurrence).

Adapted from Cancer Prehabilitation: a short review, 27 January 2021.
Who should do prehabilitation
Prehabilitation is for everyone with a new diagnosis of breast cancer or Ductal carcinoma in situ (DCIS).
It does not matter:
- your age
- what type of tumour you have
- your level of fitness
- your treatment plan.
When should it begin
Begin immediately, or soon after diagnosis.
Exercise and cancer - How targeted exercise can help fight cancer
By the time you hit midlife, odds are you or someone close to you will be touched by cancer. Cancer remains a potentially lethal lottery and everyone's experience is different.
Maple Tree is a program where people with a breast cancer diagnosis receive an exercise prescription tailored to their individual needs. A specialised physiotherapist will:
- assess your needs and goals
- provide a 12-week prescription
- check in with you regularly.
This program is free. It is recommended you begin at the start of treatment.
To be referred to the Maple Tree Program, contact the BCI Breast Care Nurses:
There is not a specific diet to follow after a breast cancer diagnosis. Maintaining general principles of healthy eating can help you stay well during treatment and support recovery.
- How healthy are my habits?
A healthy habits quiz from Healthy Eating, Active Living can help you check in with your current habits and identify where you may be able to improve. - Meal and snack ideas
If you feel too tired or unwell to shop or cook, or if you miss meals during treatment, quick meal and snack ideas in this section may help. - Cancer Connect
Cancer Connect is a free and confidential telephone peer support service. It connects someone who has cancer with a specially trained volunteer who has had a similar cancer experience. A Connect volunteer can:- listen with understanding
- share experiences and ways of coping
- provide practical information, emotional support, and hope.
Where possible, people with cancer are encouraged to continue working during treatment as a form of prehabilitation. Work can provide social connection, help maintain balance in your life and reduce financial concerns and stress.
- Helping a friend or colleague
A quick-reference brochure you can share with colleagues about how they can support you. - I am an employer
A quick-reference guide for your manager or employer. - Fair Work Commission: temporary absence from work
Information about your rights and responsibilities under the Fair Work Act. - Workplace issues
Cancer Council can provide advocacy and legal support for workplace issues. Call 13 11 20 and request workplace advocacy.
Resources for all patients
No two people have the exact same experience of breast cancer. Your experience and support needs are unique to you. These resources can help you keep well after diagnosis and are for all patients, whatever your treatment plan.
- Otis Foundation
The Otis Foundation is a national not-for-profit that provides access to a network of properties at no cost for people dealing with breast cancer. Time away can help reduce the psychological impacts of breast cancer. It can give you time to rest, relax, reconnect with loved ones and create memories. - Pink Finns
Pink Finns offers programs and support for people diagnosed with breast cancer who live in the Hawkesbury, including support groups, oncology massage and practical help. - Breast Cancer Network Australia – My Journey
My Journey is available online and as a downloadable app. It provides high quality, evidence-based information and insights from others diagnosed with breast cancer. You can access it on a computer, tablet or smartphone. - Mummy’s Wish
Mummy’s Wish supports mums and their families during the treatment journey. It provides practical support tailored to your needs. Once Mummy’s Wish receives a completed registration (from a GP, nurse, hospital social worker, treating specialist, or self-referral with supporting documents), each mum is assigned a support coordinator. The coordinator helps plan practical support during treatment. - So Brave
So Brave is Australia’s only young women’s breast cancer charity. - Podcast: Boundary setting
After diagnosis and treatment, you may find you cannot operate at the same level as before cancer, physically, cognitively and emotionally. This podcast covers how to iIdentify your limits and act on them, communicate limits to others and yourself and identify other helpful activities and prioritise them.
- Pro bono services (Cancer Council)
Cancer Council may be able to help if you or someone in your family has cancer and you need advice. Assistance is free for eligible clients. Support may include advice about legal issues, financial planning, small business accounting and workplace (HR) issues and advice.
If you have been diagnosed with breast cancer and want to know about clinical trials that may be available to you, ask your doctor if they know of a trial that might suit you.
Your doctor may also discuss clinical trials during treatment discussions.
- What is a clinical trial?
BCNA fact sheet. Discusses the process, benefits and risks. - Breast Cancer Trials Australia
Breast Cancer Trials is a breast cancer research organisation. You can search for trials that are currently open.
Westmead Breast Cancer Institute (BCI) supports complementary therapies that are evidence-based and shown to help manage symptoms. We work in partnership with the NICM Health Research Institute at Westmead.
To learn more about integrative health and its role in breast cancer treatment, read:
Integrative Oncology is the use of evidence-based complementary therapies alongside conventional treatments in a coordinated way to help reduce side effects, enhance outcomes, and support overall health, wellbeing, and quality of life.
- Complementary therapy question checklist
You may find the question checklist helpful when thinking about what to ask your complementary therapist and doctor. - Western Sydney Integrative Health Medical Centre
An initiative of Western Sydney University’s NICM Health Research Institute and Chinese Medicine Centre in the area of Traditional Chinese Medicine. It is run by Next Practice. - About Herbs app
An app to track over 290 herbs, botanicals and supplements, including possible benefits, side effects, and drug interactions. Updated weekly.
Treatment
These resources are for people who are currently receiving treatment, or who have finished treatment recently. They aim to help you manage treatment side effects and symptoms.
1. Prepare for breast surgery
These resources are for people who have recently had, or are going to have, surgery. This includes breast reconstruction.
Examples of breast surgery include:
- lumpectomy or wide local excision
- sentinel node biopsy
- mastectomy
- axillary clearance or targeted axillary dissection
- mammoplasty (breast reduction and lift)
- implant reconstruction
- own tissue reconstruction.
You can also read our fact sheets:
Post-operative bra: My Care Kit
Your Breast Care Nurse may have ordered you a post-surgical bra provided by the Breast Cancer Network Australia (BCNA). These bras are donated by Berlei to BCNA.
If they have run out of your size, they may have sent you a voucher with a code to order a free bra directly from the Berlei website.
If your bra does not fit or is the wrong size, contact BCNA to swap it for the correct size:
- Phone: 1800 500 258
Preparing your home
- Podcast: Breast Cancer Network Australia, Upfront about cancer, How to recover from reconstruction and breast surgery
- Preparing your home environment for your recovery:
Preparing your home environment
This video details how to become mobile as soon as possible after breast reconstruction surgery to assist recovery. It includes practical advice on preparing your home, best positions for sleeping and guidance on showering and dressing.
2. Recover from breast surgery
Community and home nursing
Most patients can manage their drains independently without any nursing support.
If you are not confident managing your drains, you can ask the nurses on the ward to refer you to a community nurse before you are discharged.
If you were discharged home and a community nurse was not organised, or you no longer feel confident managing your drain, you can self-refer to the Central Referral Service and request nursing support with your drain.
Central Referral Service:
- Phone: 1800 600 681
Drain care and management
- Drain care and logbook
Print this PDF to record how much comes out of your drain. It also includes step-by-step instructions for emptying the drain.
Exercise and rehabilitation
It is very important to participate in shoulder exercises soon after surgery.
Not doing range of motion exercises in the immediate post-operative stage may cause:
- lymphoedema
- extra pain
- extra swelling
- wound breakdown
- ongoing shoulder and arm movement problems.
Be guided by your Breast Care Nurse and your surgeon’s recommendations about what exercises to start, and when.
Scar management
Depending on the type of surgery you had, you may have a large or small surgical scar. Scar care is important to help prevent chronic pain and support a good cosmetic result.
If you will also have radiotherapy, scar care is particularly important. Radiotherapy can cause skin and tissue changes to scar tissue, which can lead to long-term pain.
If you have a scar in a sensitive area such as your armpit, scar management can help prevent excess scar tissue and reduce pain.
Be guided by your Breast Care Nurse and your surgeon’s recommendations about when to begin scar care.
Breast prosthesis and post-surgical bras
A breast prosthesis should be fitted professionally. It is safe to use from 6 to 8 weeks after surgery.
Recommended stores for post-surgical bras or prosthesis fitting:
Resources:
- Types of breast prosthesis
There are many different types, including for special use such as exercise and swimming. - Claim form for breast prosthesis
Medicare provides $400 every 2 years towards a breast prosthesis. You can also claim the gap through private health, if your fund covers it.
Who receives radiotherapy?
Radiotherapy is recommended if you have a lumpectomy or wide-local excision.
Sometimes radiotherapy is also recommended after a mastectomy. If so, your treatment team will discuss this with you.
To learn more, watch the video about the role of radiotherapy in the treatment of DCIS and early breast cancer:
AU Skip navigation Search Sign in The Role of Radiotherapy in the Treatment of DCIS and Early Breast Cancer
Some people diagnosed with breast cancer may be recommended radiotherapy as part of their treatment.
Skincare
Factsheets
- Radiotherapy
- Skin changes and care during radiation
Factsheet from eviQ Australia. - Caring for your skin after radiotherapy
Factsheet (BCNA). Includes how to clean and wash during treatment.
Recommended skincare products
The following skincare products listed below are safe to use before, during and after your radiation treatment.
These are only suggestions. Always be guided by your treating team.
- Epaderm ointment
- Sorbolene (this can be used as both a moisturiser and a body wash)
- MooGoo Udder Cream
- MooGoo Ultra Gentle Cleanser
- QV Gentle Wash
- Strataderm XRT
Comfortable bras
Because your skin may be sensitive or irritated during your radiation treatment, you may need soft and gentle clothing.
These bras are wireless, supportive, gentle on skin, and made of breathable material such as cotton or bamboo.
These are only suggestions. Always be guided by your treating team.
- Uniqlo ‘Ultra Relax’ Wireless Bra.
- Boody ‘Shaper Crop’ Bra (3 pack).
- Bonds ‘Comfy Crop’.
- Bella Bodies ‘Bamboo easy fit bra’.
- Calvin Klein ‘Invisibles’ Lightly Lined Bra.
- Sloggi ‘Zero Feel Bra Top’.
These resources are for people who have recently had, or are going to have, chemotherapy or other forms of systemic therapy.
This page includes resources to help you manage treatment side effects, including:
- nausea and bowel changes
- appetite and nutrition
- hair loss
- chemo brain
- fatigue and sleep
- peripheral neuropathy (nerve pain in fingers and toes).
Nausea and bowel changes
- National Public Toilet App
This app provides information on over 19,000 publicly available toilets across Australia, including accessibility, opening hours and facilities like showers and baby change and sharps disposal. - Light meal suggestions and recipes
Recipes and snacks to help stay on top of nausea.
Appetite and nutrition
- Sometimes actively preparing food may trigger your nausea. There are services which allow you to select from a menu for yourself and your family, with nutritious meals delivered at your home. Please speak to your nurse or GP about options available.
Hair loss
- Look Good Feel Better workshops
The Look Good Feel Better program has been developed with the purpose of empowering those undergoing cancer treatment by equipping them with practical skills and knowledge to face a cancer diagnosis with confidence. - Video how-to guides
Find out how to map out your eyebrows or tie a headscarf. - Temporary eyebrow tattoos
Ultra realistic and natural. All you need is water to apply.
Chemo brain
Many people have cognitive changes before, during, and after cancer treatment. Many people describe this as a mental fog. These changes may include:
- having trouble paying attention and concentrating
- thinking quickly
- organising thoughts or tasks
- short term memory.
Fatigue and sleep
Unlike everyday tiredness, fatigue in cancer is a different experience:
- sleep is not so refreshing
- your body feels different
- your thinking may be affected, for example concentration, memory, planning
- everyday tasks may be more difficult to do.
Please discuss these concerns with your health professional to get help.
Resources:
- Sleep hygiene checklist
Sleep hygiene describes good sleep habits. Research has developed guidelines and tips designed to improve sleep. There is evidence to suggest these strategies can provide long-term solutions to sleep difficulties. - Sleep Foundation sleep diary
By keeping a record of sleep, the diary makes it possible to calculate total sleep time. A sleep record also helps people identify sleep disruptions and other factors that can influence sleep quality. Identifying the habits that affect sleep can show patterns and help explain sleeping problems. - Can-sleep: making night-time sleep problems go away
This booklet from Peter Mac can help people improve existing sleep problems, cope better when new sleep problems arise or prevent sleep problems worsening.
Peripheral neuropathy
People affected by peripheral neuropathy may experience different symptoms, depending on which peripheral nerves are damaged. No two cases are exactly the same. Most often, the nerve damage causes numbness, tingling (pins and needles) or pain in the hands and feet.
For more details on what peripheral neuropathy is, read the Understanding Peripheral Neuropathy factsheet from Cancer Council.
Peripheral neuropathy can also benefit from the resources on the exercise and complementary therapy pages.
- Peripheral neuropathy video
Consultant Medical Oncologist Shirley Wong explains why it happens, risk factors and what can be done to help. Recorded at Counterpart Resource Centre, Melbourne, on 20 February 2019. - Peripheral neuropathy screening tool
Early detection and intervention are important in managing symptoms of AIPN and preventing the development of more severe neuropathy. It is recommended that assessment is undertaken by the patient or health care professional with each dose of drug. - Find an occupational therapist
Occupational therapy enables people to participate in activities they find meaningful. If you are severely impacted by peripheral neuropathy, you may need to consult with an occupational therapist to help you participate in day-to-day activities.
Hormone therapy treatment side effects include:
- menopausal symptoms
- hot sweats and hot flushes
- bone health
- vaginal dryness
- insomnia
- fatigue
- anxiety.
If you experience any of the symptoms above, please speak to you nurse or doctor about this.
