If you have a life limiting illness

Find information on health care options, accessing support services and getting help with costs in NSW if you're diagnosed with a terminal or life limiting illness. 

Being diagnosed with a life limiting illness can involve big changes to your day to day routine and relationships. 

Talking it over

After talking with your doctor about health care options, it can be helpful to get support to understand and process the diagnosis. 

Telling family and friends

The Australian Department of Health has put together a series of Dying to Talk guides to help make these conversations easier.

Telling your work

There is no legal requirement to tell your work about your diagnosis. However, if your ability to do your job is likely to change due to any extended sick leave or medical appointments, consider letting them know.

You can read more about sick and carer's leave at the Fair Work Ombudsman.

Getting emotional support

It may be helpful to get support when you’re diagnosed with a life limiting illness. Talk to your GP about accessing support services and specialist care groups, including:

  • counselling and psychology
  • social workers or online therapy
  • palliative care services

You may be able to get some of these services for no or at low cost. 

Register as an organ donor

Organs and tissue donations are used to save or transform a person's life. And almost anyone can donate, including older people and those with chronic health conditions.

Find out more at the Australian Government's DonateLife