If you have a life limiting illness
Information and resources to help you discuss your diagnosis with your family, friends and workplace, and where to get emotional support.
Talking it over
Being diagnosed with a life limiting illness can involve big changes to your day to day routine and relationships.
After talking with your doctor about health care options, it can be helpful to get support to understand and process the diagnosis.
Telling family and friends
Palliative Care Australia has put together a series of Dying to Talk discussion starters to help make these conversations easier.
Telling your work
There is no legal requirement to tell your work about your diagnosis. However, if your ability to do your job is likely to change due to any extended sick leave or medical appointments, consider letting them know.
You can read more about sick and carer's leave at the Fair Work Ombudsman.
Getting emotional support
It may be helpful to get support when you’re diagnosed with a life limiting illness. Talk to your GP about accessing support services and specialist care groups, including:
- counselling and psychology
- social workers or online therapy
- palliative care services.
You may be able to get some of these services for no or at low cost.
If you need support straight away, call Lifeline on 13 11 14. They’re open 24 hours a day, 7 days a week. You can also access Lifeline services online.
Learn more about coping with a terminal illness at healthdirect.
If you want to register as an organ donor
Organs and tissue donations are used to save or transform a person's life. And almost anyone can donate, including older people and those with chronic health conditions.
Find out more about organ donation at DonateLife.
End of Life Planner
An interactive guide to help you prepare for end of life tasks and documents before you meet with a professional advisor. This includes will preparation, Enduring Power of Attorney, Enduring Guardianship, funeral wishes and more.
You will need to log in to your MyServiceNSW Account to use the planner.
We're now directing you to log in to the Life Administrator – End of Life Planner. You'll need a MyServiceNSW Account to continue.
Why should I log in?
By logging in you're able to:
- start the planning process
- update and save your information whenever circumstances change
- find ways to get professional advice if you need it.